Long Days

It has been a rough couple of days for Karsie.  She has been spitting up more frequently and is a bit more uncomfortable than we have seen her.  We think her schedule changed a bit yesterday (Saturday) as she was completely zonked until the afternoon.  Then she behaved a bit like she usually does in the morning.  She also was awake much later last night than she usually is.  We're not sure why that is after having such a good day the day before, but we are trying to fix the schedule issue.

We have also noticed that her spitting up is more frequent when we feed her by the tube.  When she is hungry she eats quite well and she hardly ever spits up.  However, if she is not hungry then she does not take the food orally, which means we give her the rest by tube, and she frequently spits up.  We are on the cusp of calling the doctor just to play it safe.  We're not concerned with an obstruction yet as there are not many indicators other than the spit up, but we are pretty sure there is movement in the bowel/stomach area as the shape has changed just slightly.  It could also be moving back into her body which would create some discomfort.  

Hopefully Karsie will pull through this soon so she can get back to improving her eating so she doesn't have to be tube fed.