Monday, September 21, 2009

A Plea to MOOs

We're doing an all out blitz for information lately on tissue expanders versus compression. We're still not sure we have all the information on each of those, but we definitely don't want to put Karsie through a surgery if she doesn't have to.  

Therefore, if you're a MOO (Mother of Omphalocele) or know one, or know information about:

1.  Compression Method/tissue expanders; and
2.  Who does them around us in Southern Cal (or the west coast) 

...please let us know.

Thanks.
Posted by at

2 comments:

  1. Tiffany LocketteSeptember 23, 2009 at 8:46 AM

    Visit this blog and check with this family. Their son has tissue expanders and they may be able to give you some insight.
    http://marquissclan.blogspot.com/2009/09/quick-update.html

    ReplyDelete
  2. Thoughts on Life and Millinery.October 1, 2009 at 10:36 AM

    Hi! I'm a friend of Brad and Chris, Heidi and Josh, and I am a librarian. I spent a few minutes researching for other families like you in blogdom.

    There is an O mom webring,an O mom support blog and several other blogging O moms out there.

    If want to keep up with new blogs that are started about the topic, just go to Google, then select go to the top of the Google home page and click on the word "more" you will see another page open and a list that will include Blogs.

    Select Blogs, put in the word omphalocele and you will find blogs by families like yours who are blogging their babies daily life, and also blogs by expectant moms who have just learned that their baby has this condition.

    Here's the webring URL:

    http://www.webring.com/hub?ring=omphalocele

    A story of an O child who now has a belly button and is walking around...

    http://childrenshospitalblog.org/one-mothers-story-pentalogy-of-cantrell/

    O mom support blog:

    http://omphalocelemom.blogspot.com

    Karsie's picture is already on some of the blogs :-)

    http://blairrosalia.blogspot.com/2009/06/updates.html

    http://samerinandavao.blogspot.com/2008/11/tomorrow.html

    http://teamhelpjj.blogspot.com/2009/05/beginning.html

    http://perfectwil.blogspot.com/2006/05/3-omphalocele-repair.html

    http://marquissclan.blogspot.com/2009/09/surgery-start.html

    http://omphalocele.blogspot.com/2008/12/reaching-out-to-others.html

    I didn't see anyone specifically in San Diego (my home town) but as much as we bloggers think *everyone* blogs, actually very few people do.

    May God continue to bless all of you!

    ReplyDelete

Subscribe to: Post Comments (Atom)