Monday, February 14, 2011

Walking and Talking

Karsie is doing very well, especially in the area of talking. All of a sudden, she has exploded with words. She is copying pretty much everything we say now, and it sounds like the words we say. Before it was just mumbling, but she has started now to really mimic. She is saying small sentences and is just a blast to be around. Every day is something new.

Another area that is doing very well is her drinking. She is drinking lots of water each day and seems to enjoy it. Eating still is not great, but we have some good days here and there.

We've had quite the issue with her G-tube. She has been leaking everywhere lately, and we have been fighting yeast around her site, which then brings on her scratching and digging at it, which makes it even worse with bleeding and creating sores. The digging then makes it leak more which creates more yeast...and so on and so forth. However, we seem to have fixed it. She has been the owner of a 1 cm button for over a year now and we continued to ask for a .8 cm button, which would fit more snugly (in our opinion) thus making it harder to leak. The doctors said that the 1 cm button fit well, so we never changed it. Alas, we got a hold of a .8 cm button from a medical supply store, and have been using it for a week now. So far, leaking is WAY down! Take that.

Moral of the story...common sense sometimes outweighs everything else.

1 comment:

  1. Good for you guys! Sometimes parent intuition outweighs medical expertise. We did the same for our feeding regimen and low and behold, Kalista stopped retching and is starting to understand the concept of food and drinking. We made the executive decision to rid ourselves of the Joey pump...such rebel parents!