Monday, May 24, 2010


We're alive and well. The good news for us is that we have been in a fairly rigid routine, which is good for Karsie. The bad news for our blog is that the routine really isn't news, so there's not much to report other than cute pictures and videos.

Karsie has been fighting a bit of a cough lately which comes and goes with the day. Today was the first day that we really noticed her having it all day, so we're watching her pretty close. However, she has strong enough muscles that have developed that she can cough a lot of the "gunk" out much easier than when we had to take her in.

We have a tentative appointment for plastic surgery in October. Seems so far away. In other words, nothing will happen surgically for her until at least then. Maybe if we can compression wrap her then her omphalocele will go in on its own and we will only have one surgery. Any of you know information on where to look or who to talk to about compression wrapping? Like what material was used, how tight to make it, what to expect, a doctor to call? We've been tightly wrapping it with her bandage and it isn't getting bigger, but it's definitely not going back in. Just curious.

We have a slew of appointments the first week in June. We get done with teaching early June, so it'll be nice to be able to be flexible with things. We see our doctors that we missed out on when we had to take Karsie in for her bloated stomach after Easter. Follow up where Children's Hospital measures her growth and strength, neurology, and G.I.

She continues to get cuter. She LOVES our dogs - animals in general actually. They play nicely together.

Until next time....


  1. Hi name is April, and I too was born w/ and omphalocele. I have been following Karsie's progress, and I looked at her pictures today, and she looks like what I would have looked like back then. I was in the hospital for 22 months, and I had a lot of problems. It looks like Karsie is doing wonderful. If you have any questions about the future, please let leave me a comment.

  2. Please don't stop keeping us informed on Karsie's development! Every bit of news is another point to be thankful for. God is so good!!! My prayers are for Karsie and each step that she makes toward October. God bless you and your family of three!