Wednesday, October 14, 2009
We realize there wasn't much information regarding her discharge, and updates haven't been real frequent lately, so here's the scoop:
Karsie has been having amazing days lately. She has all of a sudden started to gain lots of weight. Over the past week or so she has about averaged her goal at around 30 grams per day of weight gain (except tonight which is a prayer request we will get to). We had been hearing rumors for a couple days that we were within a week or so of discharge.
We have been also excited at Karsie's eating habits. At one point this past week she was taking close to 50 mL of breast milk orally. She has slipped a bit from that, but she is still doing quite well.
Anyhow, we knew the doctors had a meeting today to discuss all of the patients one by one (as they do every Tuesday) and we knew we were going to come up. Everything had been going well and we felt like the hospital wasn't doing anything that our pediatrician couldn't do. We thought they were going to give us a date in a few days, but instead they came in and said "So, do you want to take her home tomorrow?" Like we would say no to that.
We have a prayer request. Of all nights to lose a bunch of weight Karsie decided to do that tonight. Her trend is still good, which we think overrides one day's worth of data, but it's still making us nervous that they will look at the one day and decide to hold her day to day. The good news is that this is her pattern. She grows and grows and then loses, and then grows and grows and then loses. We hope they see this and pray that they still let her come home. She does need to continue to grow, but all of her treatment can be done at home, and all of her orders can be done by our pediatrician.
We will keep everyone posted tomorrow as it will be a long day getting everything ready and done. We hope to have our little one where she belongs tomorrow: with her parents.